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ECRI Guidelines Trust, September 18, 2019


>>HELLO AND WELCOME TO THE SPECIAL EDITION OF THE BOOST BOX. I’M HAPPY TO HOST TODAY FOR OUR MOST POPULAR WEBINAR EVER. TODAY WE’RE JOINED BY ANNE WERT, JANICE AND LISA. BEFORE I HAND IT OVER TO THEM, WE’VE GOT A COUPLE OF HOUSEKEEPING ISSUES TO ATTEND TO. FIRST, YOU ALL ARE MUTED. WE HAVE ABOUT 300 PEOPLE REGISTERED FOR THIS WEBINAR. YOU CAN PUT YOUR QUESTIONS IN THE CHAT BOX AND THE PRESENTERS WILL PAUSE A COUPLE OF TIMES DURING THEIR PRESENTATION FOR ME TO ASK THEM QUESTIONS THAT YOU’VE PUT IN. WHEN YOU PUT QUESTIONS IN THE CHAT BOX, MAKE SURE IT SAYS “SEND TO ALL PARTICIPANTS.” THIS WEBINAR IS ELIGIBLE FOR CREDIT. YOU WILL BE REDIRECTED WHEN YOU EXIT WEBEX TO THE EVALUATION. THIS WEBINAR IS BEING CAPTIONED AND RECORDED. THERE IS A LINK TO THE LIVE CAPTIONING IN THE CHAT BOX. WITHOUT FURTHER ADO, I WILL HAND IT OVER TO OUR GUEST SPEAKERS TODAY. THANK YOU SO MUCH.>>THANK YOU,, KATE. I THANK EVERYBODY FOR JOINING. HOPEFULLY YOU ALL CAN SEE MY SLIDES. SO TODAY WE’LL BE PROVIDING YOU WITH JUST SOME BACKGROUND INFORMATION ABOUT EGT. WE’LL SHOW YOU OUR PRODUCTS AND SERVICES, WE’LL TAKE YOU ON A TOUR OF THE WEBSITE, WE’LL PROVIDE A LITTLE BIT MORE IN DEPTH DETAIL ON TWO OF OUR MAJOR PRODUCTS THAT WE OFFER, AND INFORMATION ON HOW TO REGISTER AND TAKE ANY QUESTIONS YOU MAY HAVE. PRIOR TO ACTUALLY TELLING YOU ABOUT EGT, I REALIZED WE DON’T HAVE A SLIDE ON ECRI INSTITUTE. SO SOME OF YOU MAY BE FAMILIAR WITH US. ECRI INSTITUTE IS A 50-YEAR-OLD NON-PROFIT HEALTHCARE RESEARCH ORGANIZATION BASED IN SUBURBAN PHILADELPHIA. WE WERE ACTUALLY THE CONTRACTOR RESPONSIBLE FOR THE DEVELOPMENT, MAINTENANCE AND ENHANCEMENT OF THE NATIONAL GUIDELINE CLEARINGHOUSE, WHICH WAS ALSO KNOWN AS NGC, WHICH WAS AN ARC SPONSORED GUIDELINE REPOSITORY FROM 1999 TO ITS CLOSING IN SO WITH THAT, WHEN WE FOUND OUT ABOUT THE CLOSING OF NGC, ECRI DECIDED TO TAKE UP THE TORCH AND DEVELOP A GUIDELINE REPOSITORY BECAUSE WE KNEW THE IMPORTANCE OF WHAT THE WORK WE DID FOR NGC WAS AND WE WANTED TO CONTINUE THAT AND ACTUALLY GO BEYOND WHAT WE DID FOR NGC. SO ECRI DECIDED TO DEVELOP THE EGT AND IT’S A PUBLICLY AVAILABLE ONLINE REPOSITORY OF OBJECTIVE, EVIDENCE-BASED CLINICAL PRACTICE GUIDELINE CONTENT. ONE OF THE THINGS THAT I PROBABLY SHOULD HAVE PUT IN THE SLIDE WHICH I DIDN’T IS THAT IT’S FREELY AVAILABLE, TO IT’S ACCESSIBLE TO ANYONE WHO REGISTERS TO THE SITE. OUR PURPOSE IS TO PROVIDE PHYSICIANS, NURSES, LIBRARIANS, EDUCATORS, RESEARCHERS AND OTHER MEMBERS OF THE CLINICAL COMMUNITY WITH UP TO DATE CLINICAL PRACTICE GUIDANCE TO ADVANCE EFFECTIVE PATIENT CARE GLOBALLY. AND OUR REPOSITORY IS ACCESSED AND WE HAVE PARTICIPATING DEVELOPERS FROM NATIONAL AS WELL AS INTERNATIONAL GUIDELINE AND MEDICAL SPECIALTY SOCIETIES. SO WHEN WE WERE DEVELOPING EGT AFTER WE FOUND OUT ABOUT THE CLOSING OF NGC, ECRI STARTED TO SELF FUND THE BUILD OF OUR WEBSITE, AND BECAUSE WE WERE IN THE NEWS WITH REGARD TO OUR EFFORTS, THERE WAS A LOT OF PUBLICITY SURROUNDING THE CLOSING, WE GOT A CALL FROM THE GORDON AND BETTY MOORE FOUNDATION, WHO HAD KEPT APPRISED OF WHAT WAS GOING ON, AND SAID THAT THEY WANTED TO OFFER US FUNDING FOR OUR INITIAL LAUNCH OF EGT. NEEDLESS TO SAY, THAT WAS A VERY GOOD DAY BECAUSE WE DON’T OFTEN GET FUNDERS CALLING US UNSOLICITED PROVIDING US WITH FUNDING. SO WE ARE THANKFUL THAT THE EGT IS CURRENTLY FREELY AVAILABLE PART AND PARCEL TO THIS FUNDING THAT WE RECEIVED. SO WHAT IS IT THAT THEY’RE FUNDING FOR US? THESE ITEMS, WE’LL GO IN MORE DETAIL BUT BRIEFLY THE GUIDELINE BRIEFS, WHICH ARE SUCCINCT SUMMARIES OF FULL TEXT GUIDELINES, TRUST SCORE CARDS, WHICH ARE AN ASSESSMENT OF THE GUIDELINES AGAINST IOM STANDARDS THAT WERE DEVELOPED IN 2011 FOR TRUSTWORTHINESS. WE PROVIDE A MONTHLY NEWSLETTER TO ALL REGISTERED USERS, AND THE MOORE FOUNDATION ALSO FUNDS A TECHNICAL ADVISORY PANEL THAT ARE COMPRISED OF EXPERTS IN THE FIELD OF GUIDELINES AND QUALITY MEASURES, METHODOLOGIES, CLINICAL INFORMATACISTS, CLINICAL DECISION SUPPORT AS WELL AS PATIENT SUPPORT AND PATIENT TOOLS. AND THEY’RE CHARGED WITH HELPING EGT NOT ONLY DEVELOP CURRENT PRODUCTS BUT EVOLVE OUR THINKING AS WE MOVE GUIDELINES INTO DIGITIZATION. SO AGAIN WHAT WE CURRENTLY OFFER, IT’S THE SUCCINCT SUMMARIES GUIDELINES BRIEFS AND TRUST SCORE CARDS, AND MY COLLEAGUES WILL NOT ONLY DEMO THESE PRODUCTS BUT THEY WILL ALSO GO INTO A LITTLE BIT MORE OF A DEEP DIVE ON THESE TWO SO YOU HAVE A BETTER UNDERSTANDING OF WHAT IT IS WE’RE PROVIDING. WE INCLUDE A COMPREHENSIVE INVENTORY. SO WE WANT TO BE KNOWN AS THE GO-TO RESOURCE FOR CURRENT GUIDELINES THAT YOU AS LIBRARIANS DON’T HAVE TO GO OUT AND ACCESS OTHER RESOURCES TO FIND CURRENT GUIDELINES. ONE THING THAT’S PORT, WHEN NGC WAS CLOSED, SOME TOOK THAT CONTENT, REPACKAGED IT AND POSTED IT ON THEIR SITE, BUT WE DID NOT DO THAT FOR A VARIETY OF REASONS. ONE WAS IT WAS NOT — THE GUIDELINES THAT WERE POSTED TO NGC, DEVELOPERS GAVE PERMISSION TO ARC FOR HOSTING THAT INFORMATION, NOT WITH ECRI. AND A LOT OF THAT CONTENT WAS ACTUALLY OLD. SO OUT OF THE 1400 GUIDELINES THAT WERE ON NGC AT THE TIME OF ITS CLOSURE, WE DIDN’T TAKE 500 OF THOSE BECAUSE THEY WOULD HAVE AGED OUT DUE TO CURRENCY. SO WE MAINTAIN CURRENCY WITH EGT SO THE GUIDELINES YOU’RE SEEING ON OUR SITE ARE UP TO DATE, THEY’RE NOT OLD, THEY’RE NOT OUTDATED AND WE’RE NOT PROMOTING UNSAFE OR OUTMODED PRACTICES. OUR MONTHLY NEWSLETTER IS SOMETHING THAT, AGAIN, OUR REGISTERED USERS GET ACCESS TO, AND WE PROVIDE IN THIS GUIDELINES THAT WE’LL BE POSTING TO THE SITE, ANY TYPE OF RECOMMENDED READINGS THAT WE THINK ARE IMPORTANT TO OUR GUIDELINE COMMUNITY MEMBERS. WE WILL BE POSTING INFORMATION, FOR EXAMPLE, WE POSTED OUR WEBINAR TO YOU FOLKS TODAY AT NNLM, AS WELL AS ANYWHERE EGT WILL BE PRESENTING OR EXHIBITING AT UPCOMING CONFERENCES. AND THEN LAST BUT NOT LEAST, WE PROVIDE SOMETHING WHICH IS CALLED QUARTERLY SCORECARD ANALYTICS. AND WHAT THIS IS IS THAT WE DO ANALYSIS OF HOW OUR GUIDELINE DEVELOPERS SCORED ON A SPECIFIC IOM STANDARD FOR THE CPGS — I’M SORRY — FOR THE GUIDELINES THAT WE SCORED AND POSTED TO OUR WEBSITE WITHIN THAT QUARTER. AND THEN WE PROVIDE THOSE RESULTS ACROSS MEDICAL SPECIALTIES. AND AGAIN, ANNE WILL BE SHOWING YOU WHAT THE SCORECARD ANALYTICS LOOK LIKE IN A LITTLE BIT MORE DETAIL. SO THAT’S SOMETHING THAT DEVELOPERS ARE REALLY INTERESTED IN SEEING BECAUSE THEY WANT TO KNOW HOW THEY ARE SCORING ON SPECIFIC STANDARDS ALONG WITH THEIR GUIDELINE COLLEAGUES WITHIN THAT SAME SPECIALTY AREA. OUR AUDIENCE. OUR AUDIENCE IS VARIED, AS YOU CAN SEE. YOU CAN ALSO SEE THAT A HUGE PORTION OF OUR AUDIENCE ARE MEDICAL LIBRARIANS, AND THE OTHER TWO AUDIENCE MEMBER GROUPS THAT ARE LARGE ARE NURSES AND STUDENTS, AND THESE STUDENTS COULD BE NURSES, MEDICAL STUDENTS, MPH STUDENTS OR SOMEWHERE IN BETWEEN. SO HOW DO WE KNOW WHO OUR AUDIENCE IS? ONE THING IS THAT WHEN WE ASK USERS TO REGISTER FOR EGT, WE ASK THEM THEIR INFORMATION WITH REGARD TO THEIR JOB TITLE. AND THE REASON WE DO THIS IS WE’RE TRYING TO DEVELOP PRODUCTS AND TOOLS FOR SPECIFIC AUDIENCE MEMBERS, AND ESPECIALLY FOR THOSE THAT ACCESS OUR SITE AS PART AND PARCEL TO THEIR DAILY ACTIVITIES. SO YOU’LL SEE THIS, ONE OF THE ENHANCEMENTS AND FEATURES WE JUST ROLLED OUT LAST WEEK WAS DEVELOPED SPECIFICALLY WITH A LIBRARIAN AUDIENCE IN MIND. A BIT OF OUR STAFF SO YOU KNOW ACTUALLY THE NUMBERS THAT WE’RE CURRENTLY REPRESENTING IN OUR REPOSITORY. WE HAVE MORE THAN 1300 GUIDELINES CURRENTLY. WHICH ARE THE BRIEFS AND SCORECARDS. THE REMAINING 800 AND CHANGE WHERE WE DON’T HAVE THE BRIEF AND SCORE CARDS, WE ACTUALLY LINK OUT TO THE DEVELOPER’S WEBSITE OR TO PUBMED SO YOU HAVE ACCESS TO THE FULL TEXT GUIDELINE. WE HAVE 125 DEVELOPERS FROM NATIONAL AND INTERNATIONAL SOCIETIES, 65 OF WHICH HAVE THESE RIGOROUS PRODUCTS WHICH WE ARE CALLING THE BRIEFS AND SCORE CARDS. WE HAVE A GLOBAL REACH, AND I SHOULD HAVE MENTIONED THAT WE ACTUALLY LAUNCHED NOVEMBER OF OLD YET BUT AS YOU CAN SEE, OUR NUMBERS ARE UP THERE AND CONTINUE TO GROW, AND AT THIS TIME, WE HAVE 8,000 REGISTERED USERS. OUTSIDE THE U.S., WE HAVE REGISTERED USERS FROM 84 OTHER COUNTRIES AND TERRITORIES. SO BEFORE I HAND THE CONTROLS OVER TO ANNE, YOU CAN ACTUALLY GET TO THE GOOD STUFF, I WANTED TO PAUSE HERE TO SEE IF THERE ARE ANY QUESTIONS.>>YOU CAN PUT YOUR QUESTIONS INTO THE CHAT BOX AND MAKE SURE YOU CLICK “SEND TO ALL PARTICIPANTS.” I’LL PAUSE BRIEFLY IN CASE THERE’S ANYBODY TYPING QUESTIONS NOW.>>WHAT ARE BRIEFS AND SCORE CARDS?>>ACTUALLY WE’RE GOING TO SHOW THE SHORT ANSWER IS IT’S A — SUMMARY OF THE FULL TEXT GUIDELINE. MANY OF YOU KNOW WE TRY TO STRUCTURE THEM INTO ABSTRACTS. THE SCORECARD IS BASICALLY A CHECKLIST AND A RATING OF HOW THE GUIDELINES SCORED AGAINST SPECIFIC IOM STANDARDS, AND WE PROVIDE A 1 THROUGH 5 RATING ON HOW DEVELOPERS SCORED IN CERTAIN AREAS. AND LISA WILL ACTUALLY BE TAKING THAT INTO A MORE GRANULAR LEVEL SO IF YOU CAN KIND OF PUT IT ON PAUSE FOR A MINUTE, WE’RE GOING TO ACTUALLY GET TO THAT SOON.>>OF THE 800 THAT DON’T HAVE A SCORECARD CURRENTLY, ARE THERE PLANS TO IMPLEMENT THEM?>>YES, ONE OF THE THINGS THAT I DIDN’T MENTION WHICH ANNE WILL GET INTO, THE CONTENT THAT WE’RE POSTING ISN’T CONTENT THAT WE CREATED — I MEAN, WE CREATE THESE PRODUCTS BASED FROM — OFF OF GUIDELINES. SO WE CAN’T JUST CREATE THESE BRIEFS AND SCORE CARDS WITHOUT HAVING PERMISSION FROM THE GUIDELINE DEVELOPERS. BUT WHAT WE DO IS, WE REACH OUT TO THESE DEVELOPERS, WHOSE GUIDELINES MADE OUR INCLUSION CRITERIA, WHICH ANNE WILL SHOW YOU, AND WE SPEAK THEIR PERMISSION TO CREATE THESE DERIVATIVE PRODUCTS. SO THERE’S TWO SCENARIOS. ONE IS FOR THOSE DEVELOPERS THAT DO MEET OUR CRITERIA, HOWEVER, WE DON’T HAVE THESE PRODUCTS CREATED, WE’RE WAITING TO GET THEIR PERMISSION TO DO SO. FOR THE OTHER HALF, THEIR GUIDELINES DON’T MEET OUR CRITERIA, AND AGAIN, ANNE WILL SHOW YOU THE CRITERIA THAT MUST BE MET IN ORDER FOR US TO CREATE THESE PRODUCTS.>>A COUPLE FOLKS HAVE ASKED, ARE THERE APIS FOR THE DATABASE?>>NO. NOT AT THIS TIME.>>CAN YOU CONFIRM THE COST FOR THE CONTENT?>>THERE IS NO COST. THIS IS FREELY AVAILABLE. ANYONE CAN REGISTER AND ACCESS THE CONTENT CURRENTLY HOSTED ON OUR SITE.>>SOMEBODY ASKED ABOUT WHETHER THERE’S A WAY TO PROVIDE A LINK FROM A LIBRARY HOME PAGE THAT WOULD NOT REQUIRE INDIVIDUAL REGISTRATION?>>NO, INDIVIDUAL REGISTRATION IS REQUIRED AT THIS TIME. WE ARE INVESTIGATING API BECAUSE WE KNOW THAT IS A COMMON QUESTION WE’VE BEEN ASKED, BUT AGAIN, INITIALLY FOR STARTUP, WE ACTUALLY NEEDED TO CREATE INDIVIDUAL REGISTRATIONS IN ORDER TO FIND OUT WHO OUR AUDIENCE WAS, HOW FAR OUR REACH WAS, AND AGAIN, THIS IS BASICALLY A LOT OF INFORMATION WE NEEDED TO GET IN ORDER TO DECIDE WHO IT IS THAT’S ACCESSING OUR CONTENT AND WHAT OTHER CONTENT DO WE NEED TO PROVIDE TO THEM. SO AS OF NOW, THAT IS — CURRENTLY IT’S INDIVIDUAL REGISTRATION.>>DOES THE NEW — NOTIFY WHEN A GUIDELINE IS REMOVED OR UPDATED?>>UPDATED. WE PROVIDE NOTIFICATIONS WHEN GUIDELINES ARE UPDATED. WE DON’T PROVIDE AT THIS TIME ANY INFORMATION OF WHEN GUIDELINES ARE ARCHIVED FROM THE SITE.>>OKAY. AND WILL YOU BE WILLING TO SHARE THESE SLIDES?>>YES, OF COURSE.>>ABSOLUTELY. WE’LL SEND THE LINK TO ALL REGISTRANTS TO THE SLIDES. AND SOMEBODY ASKED, IT APPEARS THAT THERE IS INFORMATION ON THE SITE THAT IS BY SUBSCRIPTION ONLY. I CLICKED ON TELEHEALTH AND THERE IS NO FREE INFORMATION BUT SUBSCRIPTION-ONLY.>>YOU KNOW, THIS PERSON MUST BE ON THE ECRI WEBSITE, NOT THE ECRI GUIDELINES TRUST WEBSITE. AND WE’RE GOING TO GO OVER THE URL. SO WE ASSURE YOU THAT IT IS A BIT CONFUSING BECAUSE ECRI INSTITUTE IS THE ONE THAT IS THE DEVELOPER OF EGT, BUT EGT HAS ITS OWN SEPARATE WEBSITE APART FROM THE ECRI INSTITUTE WEBSITE.>>DO YOU ANTICIPATE FREE ACCESS IN PERPETUITY?>>THAT WOULD BE OUR PLAN BUT WE’LL HAVE TO SEE.>>OKAY. I THINK THOSE ARE MOST OF THE QUESTIONS FOR NOW. A LOT OF THEM WERE COMING IN FAST AND FURIOUS SO IF I DID NOT GET TO YOURS, PLEASE DO ASK IT AGAIN DURING THE NEXT BREAK, AND JUST A QUICK REMINDER FROM SOMEBODY IN THE CHAT BOX TO THE SPEAKERS TO DEFINE ACRONYMS, AND I WILL SAY I CONFIRMED WITH THE SPEAKERS THAT ECRI ITSELF IS NOT AN ACRONYM FOR ANYTHING.>>ECRI IS NO LONGER — IT USED TO BE EMERGENCY CARE RESEARCH INSTITUTE WHEN WE FIRST FORMED, AND SINCE WE DO SO MUCH MORE OUTSIDE OF THAT, WE’RE AN EVIDENT BASED PRACTICE CENTER, WE’RE A PATIENT SAFETY ORGANIZATION AND WE DO DEVISE LAB TESTING, ALL THESE DIFFERENT THINGS, WE JUST DROPPED THAT AND WE JUST USE ECRI, WHICH BASICALLY NOW STANDS FOR NOTHING. AND EGT, I APOLOGIZE, I THOUGHT I SAID IT AT FIRST, ECRI GUIDELINES TRUST, WE SOMETIMES JUST USE EGT AS AN ACRONYM. SO FEEL FREE, ANYTHING ELSE WE NEED TO CLARIFY, WE CERTAINLY WILL, AND AS I MENTIONED ON TO THE GOOD STUFF, HERE’S ACTUALLY A TOUR, SO ENJOY.>>HI, I AM ANNE WERT, OPERATIONS MANAGER FOR THE ECRI GUIDELINES TRUST AND I’M GOING TO TAKE YOU ON A TOUR OF THE CURRENT WEBSITE. THIS WEBSITE WAS LAUNCHED IN NOVEMBER 2018. THE URL FOR THE GUIDELINES TRUST WEBSITE IS GUIDELINES.ECRI.ORG. YOU CAN REGISTER FOR FREE ACCESS RIGHT FROM THE HOME PAGE OF THE GUIDELINES TRUST. WE PROVIDE THREE INFORMATIONAL PAGES TO BOTH MEMBERS AND NON-MEMBERS WHO ARE INTERESTED IN LEARNING MORE ABOUT THE GUIDELINES TRUST. OUR “ABOUT” PAGE INCLUDES A LOT OF THE INFORMATION THAT WAS GONE OVER IN THE SLIDES. OUR MISSION, OUR CURRENT FUNDER, THE GORDON AND BETTY MOORE FOUNDATION, AND OUR CURRENT PRODUCTS WHICH I WILL BE SHOWING YOU TODAY. AGAIN, QUICK RECAP, THE GUIDELINE BRIEFS WHICH ARE SUMMARIZATIONS OF THAT FULL CLINICAL PRACTICE GUIDELINE, AND OUR TRUST SCORE CARDS, WHICH ARE RATINGS OF HOW WELL THAT GUIDELINE ADHERES TO THE INSTITUTE OF MEDICINE STANDARDS FOR TRUSTWORTHINESS, AND TRUST STANDS FOR TRANSPARENCY AND RIGOR USING STANDARDS OF TRUSTWORTHINESS. SO OUR SECOND INFORMATIONAL PAGE IS OUR INCLUSION CRITERIA. ALL GUIDELINE DEVELOPERS WHO SUBMIT THEIR GUIDELINES TO US OR GUIDELINES THAT ARE IDENTIFIED BY OUR TEAM ARE VETTED AGAINST THIS INCLUSION CRITERIA. WE’RE LOOKING FOR GUIDELINES THAT ARE AVAILABLE IN ENGLISH, ONLINE FOR FREE OR FOR A FEE, AND PUBLISHED WITHIN THE LAST FIVE YEARS TO STAY CURRENT WITH PRACTICES THAT INCLUDE RECOMMENDATION STATEMENTS THAT ADDRESS PATIENT CARE, THAT ARE PRODUCED BY A RELEVANT GUIDELINE DEVELOPING ORGANIZATION SUCH AS A MEDICAL SPECIALTY SOCIETY, AND THAT ARE BASED ON A VERIFIABLE SYSTEMATIC REVIEW OF THE EVIDENCE WHERE THERE IS DOCUMENTATION OF A SEARCH STRATEGY, STUDY SELECTION, AND EVIDENCE ANALYSIS. SO IF A GUIDELINE MEETS ALL FOUR OF THESE CRITERIA, WE WILL REACH OUT TO THE GUIDELINE DEVELOPER AND ASK THEM TO PROVIDE A PERMISSION AGREEMENT, AND THAT AGREEMENT ALLOWS ECRI TO PRODUCE THE GUIDELINE BRIEF AND THE TRUST SCORECARD. NOW WE UNDERSTAND THAT NOT ALL GUIDELINES ARE GOING TO MEET THIS FULL INCLUSION CRITERIA. HOWEVER, AGAIN AS JANICE HAS MENTIONED, ONE OF THE SERVICES OF THE GUIDELINES TRUST IS TO BE A GO-TO RESOURCE TO SEARCH FOR CLINICAL PRACTICE GUIDELINE CONTENT. SO IF A GUIDELINE MEETS CRITERIA GUIDELINE IN OUR SEARCH FEATURE. WE WILL NOT PRODUCE A BRIEF AND A TRUST SCORECARD, HOWEVER, WE WILL PROVIDE A LINK TO THE FULL GUIDELINE THAT’S AVAILABLE ON THE DEVELOPER’S WEBSITE AND I’LL SHOW YOU THIS ON A SEARCH RESULTS PAGE. AGAIN I WANT TO NOTE THAT SOME OF THE GUIDELINES IN THE REPOSITORY, WE ARE WORKING WITH THE GUIDELINE DEVELOPERS TO SECURE THOSE PERMISSION AGREEMENTS. SO THERE MAY BE A GUIDELINE THAT MEETS ALL FOUR OF THESE CRITERIA, BUT WE HAVE NOT YET PRODUCED THAT BRIEF AND SCORECARD BECAUSE WE’RE WORKING TO SECURE THAT PERMISSION AGREEMENT. OUR THIRD INFORMATIONAL PAGE IS ABOUT OUR TRUST SCORECARD. SO WE PROVIDE A LOT OF INFORMATION ON WHAT ARE THE IOM STANDARDS, THE TOOL THAT ECRI USES TO ASSESS THE GUIDELINES, WHICH IS THE — INSTRUMENT AND WE PROVIDE ACCESS TO THAT TOOL, AND THEN ALL THE DIFFERENT STANDARDS THAT WE ARE ASSESSING THE GUIDELINE. HERE YOU CAN ALSO ACCESS THOSE QUARTERLY TRUST SCORECARD ANALYTICS THAT JANICE HAD MENTIONED. AGAIN, WE ARE PROVIDING THESE TO LET OUR MEMBERS KNOW AND EDUCATE THEM ON HOW WELL GUIDELINE DEVELOPERS ARE DOING ON PARTICULAR STANDARDS. WE TYPICALLY HAVE A FEATURED ANALYTICS, SO FOR THIS QUARTER, WE DID LITERATURE SEARCH. AND THEN WE PROVIDE A BRIEF EXPLANATION OF THE STANDARD, AND THEN WE PROVIDE A GRAPH TO SHOW YOU THE MEAN BY CLINICAL SPECIALTY. THE ADDITIONAL STANDARDS WE’VE DONE THIS YEAR SO FAR ARE ON FINANCIAL COIS AND ON PATIENT PUBLIC PERSPECTIVE. SO NOW I’M GOING TO GO AHEAD AND LOG IN. NOW BECAUSE I’VE ALREADY REGISTERED AND LISA IN THE NEXT SESSION WILL BE GOING THROUGH OUR REGISTRATION STEPS, THE HOME PAGE IS GOING TO REFRESH. AND I HAVE A NEW SECTION. SO OUR NEW CONFERENCE SECTION FEATURES THE SIX MONTHS RECENTLY POSTED GUIDELINES TO OUR REPOSITORY. IF YOU QUICK THE “VIEW MORE,” YOU CAN ACCESS THE PAGE THAT HAS ALL THE GUIDELINES THAT HAVE BEEN POSTED WITHIN THE PAST 30 DAYS. WE POST GUIDELINES AT LEAST TWICE A WEEK SO THIS SECTION IS CONTINUOUSLY BEING REFRESHED. I’LL GOING TO START WITH A SIMPLE KEYWORD SEARCH. THIS IS OUR SEARCH RESULTS PAGE. EACH SEARCH RESULT INCLUDES THE TITLE OF THE GUIDELINE, THE GUIDELINE I.D. OR UNIQUE IDENTIFIER, THE PUBLICATION DATE OF THE GUIDELINES, AND THEN THE GUIDELINE DEVELOPER OR DEVELOPERS. WE THEN PROVIDE ACCESS TO THE DIFFERENT PRODUCTS THAT ARE AVAILABLE FOR THAT GUIDELINE. SO AS YOU CAN SEE ON THIS PAGE, SOME OF THE GUIDELINE BRIEFS AND TRUST SCORE CARDS ARE GREYED OUT, AND THAT’S, AGAIN, BECAUSE EITHER THE GUIDELINE DOES NOT MEET THE FULL INCLUSION CRITERIA OR WE HAVE YET TO SECURE THAT PERMISSION AGREEMENT WITH THAT GUIDELINE DEVELOPER. AND IF YOU HOVER OVER EACH OF THESE PRODUCTS, A LIGHT BOX APPEARS AND IT LETS YOU KNOW THE REASON WHY THAT PRODUCT IS NOT AVAILABLE. WE OFFER FILTERS ON THE LEFT-HAND SIDE. THE FIRST IS A TOGGLE SO YOU CAN FILTER YOUR RESULTS TO SET GUIDELINES WITH BRIEFS AND SCORE CARDS AND THOSE WITHOUT. YOU CAN ALSO NARROW YOUR RESULT SET BY PUBLICATION YEAR, ORGANIZATION, PATIENT AGE, CLINICAL AREA, AND INTERVENTION. YOU DID ALSO SORT YOUR RESULT SET, IT RESORTS TO RELEVANCE, YOU CAN ALSO SORT BY YEAR. AND NOW NEXT TO EACH GUIDELINE, THERE IS A CHECK BOX WHICH YOU CAN USE TO SELECT GUIDELINES THAT YOU WANT TO EXPORT THE CITATION OF THAT GUIDELINE BRIEF AND/OR GUIDELINE IF IT DOES NOT INCLUDE A BRIEF. YOU CAN ALSO SELECT ALL OF YOUR RESULTS IN YOUR RESULTS SET. SO I’M GOING TO GO AHEAD AND SELECT SOME AND WHEN I DO SO, YOU CAN SEE THAT MY EXPORT SELECTED CITATIONS BUTTON IS NOW ACTIVE. I ALSO HAVE A BANNER DOWN HERE THAT INDICATES TO ME HOW MANY RESULTS I’VE SELECTED TO EXPORT. I CAN ALSO SELECT ALL RESULTS FROM THIS BANNER AND EXPORT THE CITATIONS FROM THIS BANNER. AS I SCROLL DOWN, THE BANNER IS STICKY. IT STAYS WITH ME OR AS I PAGINATE THROUGH. AND AS YOU CAN SEE, MY RESULTS CONTINUE TO ACCRUE. WHEN I’M READY TO EXPORT MY CITATIONS, YOU CAN DO SO AGAIN FROM THIS BANNER OR FROM THE BUTTON AT THE TOP OF THE RESULTS PAGE. THIS IS LETTING YOU CHOOSE WHICH FILE FORMAT YOU WOULD LIKE TO EXPORT YOUR CITATION INTO. WE OFFER RIS, XML, CSV, AND PLAIN TEXT. FOR EACH OF THE FILE FORMATS, WE PROVIDE A BRIEF TEMPLATE OF WHAT IS GOING TO BE CONTAINED IN THE EXPORT FOR EACH GUIDELINE. THOSE WERE GUIDELINE BRIEFS WE LIST FIRST, AND THEN THOSE WITHOUT BRIEFS. EACH ONE OF THE EXPORT FORMATS, THESE TEMPLATES CHANGE FOR THAT PARTICULAR FORMAT. I’M GOING TO GO AHEAD AND SELECT RIS AND CLICK THE EXPORT BUTTON. WHEN I DO SO, I GET A NOTIFICATION THAT MY EXPORT IS SUCCESSFUL AND THEN YOU CAN GO AHEAD AND OPEN UP YOUR EXPORT FILE, AND AGAIN, THIS CAN BE USED FOR YOUR PURPOSES OR FOR UPLOADING TO A CITATION MANAGEMENT TOOL. SO NOW I’M GOING TO SHOW YOU A GUIDELINE BRIEF. AT THE TOP OF THE BRIEF, WE HAVE A LOT OF THE SAME IDENTIFYING INFORMATION THAT WAS ON THE SEARCH RESULTS PAGE. WE HAVE THE TITLE OF THE GUIDELINE, THE GUIDELINE I.D., AGAIN, THE PUBLICATION DATE OF THE GUIDELINE AND THE GUIDELINE DEVELOPER. WE ALSO PROVIDE THE BIBLIOGRAPHIC CITATION OF THE GUIDELINE AND A LINK TO PUBMED WHEN AVAILABLE. YOU CAN PRINT THIS GUIDELINE BRIEF OR USE THIS FEATURE TO SAVE IT AS A PDF, AND THEN HERE’S WHERE YOU CAN ACCESS THE FULL TEXT GUIDELINE THAT’S AVAILABLE ON THE DEVELOPER’S WEBSITE. YOU CAN ALSO ACCESS THE TRUST SCORECARD DIRECTLY FROM THE TOP OF THE GUIDELINE BRIEF. YOU DO NOT HAVE TO GO BACK TO THE SEARCH RESULTS PAGE. I’M NOT GOING TO GET INTO TOO MUCH DETAIL ABOUT THE GUIDELINE BRIEF. LISA IS GOING TO GO INTO THE FIELDS WE’RE CAPTURING IN OUR NEXT SESSION BUT I JUST WANTED TO LET YOU KNOW, THERE ARE FIVE MAIN SECTIONS OF THE GUIDELINE BRIEF AND WE DO PROVIDE THIS EASY NAVIGATION ON THE LEFT-HAND SIDE SO YOU CAN JUMP TO YOUR PARTICULAR SECTION OR FIELD OF INTEREST. THOSE FIVE MAIN SECTIONS ARE OVERVIEW, RECOMMENDATIONS, METHODS, RELATED CONTENT, AND OUR COPYRIGHT/DISCLAIMER. THIS IS OUR TRUST SCORECARD. WE PROVIDE THE SAME IDENTIFYING INFORMATION AT THE TOP OF THE SCORECARD AS WE DO FOR THE BRIEF TO BRING HARMONIZATION BETWEEN THE BRIEF AND SCORECARD FOR THIS PARTICULAR GUIDELINE. AND THEN HERE IS WHERE WE ACTUALLY HAVE THE SCORECARD AND THE IOM STANDARDS THAT WE ARE ASSESSING. AGAIN, LISA WILL GET INTO MORE DETAIL ABOUT EACH OF THESE STANDARDS IN OUR NEXT SESSION. I JUST WANT TO MENTION THAT THREE OF THE STANDARDS, WE HAVE A YES-NO OPTION, AND THE REMAINING, WE’RE DOING A 1 TO IF YOU HOVER OVER EACH OF THESE STANDARDS, A LIGHT BOX APPEARS. THIS IS PROVIDING A BRIEF EXPLANATION OF WHAT ECRI IS LOOKING FOR WHEN WE GO TO ASSESS THAT STANDARD. SO NOW I’D LIKE TO SHARE SOME OTHER WAYS THAT YOU CAN SEARCH THE WEBSITE. IF YOU DO AN ASTERISK, THIS WILL BRING BACK THE FULL REPOSITORY OF GUIDELINES THAT ARE AVAILABLE ON THE SITE. AS YOU CAN SEE, WE HAVE OVER CAN USE THE FILTERS TO NARROW YOUR RESULT SET. IF YOU KNOW THE GUIDELINE I.D., YOU CAN SEARCH BY THAT NUMBER AND IT WILL BRING BACK YOUR GUIDELINE OF INTEREST. WHEN SEARCHING BY MULTIPLE TERMS OR PHRASES, YOUR RESULT SET IS GOING TO CONTAIN GUIDELINES THAT INCLUDE ANY OF THE TERMS ANYWHERE IN THE GUIDELINE BRIEF. AND/OR IN THE TITLE OF THE GUIDELINE OR SOURCE THE GUIDELINE, IF THERE IS NO GUIDELINE BRIEF. YOU CAN DO EXACT PHRASE SEARCHING BY USING QUOTATION MARKS. AGAIN, THIS IS SEARCHING THE GUIDELINE TITLE AND THE GUIDELINE BRIEF FOR THOSE THAT HAVE. FOR THOSE THAT DO NOT, IT’S LOOKING AT THE GUIDELINE TITLE AND WE DO HAVE THE BIBLIOGRAPHIC SOURCE. WE OFFER SEARCHING BY WILD CARD AND TRUNCATION CHARACTER. SO FOR EXAMPLE, IF YOU WANTED TO DO TRUNCATION AT THE END OF A TERM, YOU WOULD USE THE ASTERISK. SO FOR THIS EXAMPLE, IT’S GOING TO BRING BACK GUIDELINES WHERE IT IDENTIFIES THE TERM “SURVIVOR” OR “SURVIVORS” OR SURVIVORSHIP. WE OFFER BOOLEAN OPERATORS. SEARCHING WITH BOOLEAN OPERATORS OF AND, OR, AND NOT. I’LL JUST SHOW YOU A QUICK EXAMPLE. SO IN THIS EXAMPLE, THE RESULTS ARE GOING TO INCLUDE GUIDELINES THAT CONTAIN, OF COURSE, DIABETES, OR DIABETIC, AND ALSO CONTAIN PREVENTION OR PREVENTS OR PREVENTABLE OR PROPHYLAXIS OR PROPHYLACTIC. AND THEN FINALLY, WE OFFER PROXIMITY SEARCHING WHEN YOU DESIRE RESULTS WHERE YOUR SEARCH TERMS ARE LOCATED NEAR EACH OTHER. SO IN THIS EXAMPLE, YOUR RESULTS ARE GOING TO CONTAIN GUIDELINES WHERE DIABETES OCCURS WITHIN FOUR WORDS OF MANAGEMENT IN ANY ORDER. ALL THIS INFORMATION INCLUDING ADDITIONAL EXAMPLES ARE AVAILABLE FROM OUR SEARCH TIPS PAGE. YOU CAN READ THIS AT YOUR LEISURE. THEN FINALLY, I JUST WANTED TO MENTION THAT WE ALSO JUST LAUNCHED AN FDA ALERT NOTIFICATION FEATURE ON OUR WEBSITE, SO FROM THE MENU WHEN YOU ARE LOGGED IN, YOU CAN ACCESS OUR FDA NOTICES PAGE, SO OUR TEAM HERE RECEIVES FDA NOTICES AND WHEN THOSE NOTICES RELATE OR AFFECT GUIDELINES WITHIN THE REPOSITORY, WE WILL POST THEM TO THIS PAGE. EACH ONE OF THESE NOTICES LINKS TO THE FDA WEBSITE WHERE YOU CAN READ THE FULL NOTICE. WE JUST PROVIDE A BRIEF DESCRIPTION HERE. ADDITIONALLY, IF A NOTICE HAS BEEN POSTED SINCE YOUR LAST LOGIN, WHEN YOU DO LOG IN, WE DO HAVE A RED BANNER THAT APPEARS THAT LETS YOU KNOW THAT THERE IS A NEW FDA NOTICE THAT HAS BEEN POSTED TO THE PAGE. SO WITH THAT, I’M DONE WITH THE TOUR OF THE ECRI GUIDELINES TRUST WEBSITE. I’M GOING TO PAUSE HERE BEFORE WE MOVE ON TO LISA’S SESSION JUST TO SEE IF THERE ARE ANY QUESTIONS.>>HI, ANNE. THERE WERE A COUPLE THAT CAME IN WHILE YOU WERE DEMONSTRATING.>>OKAY.>>HOW COMPLETE IS THE DATABASE FOR GUIDELINES THAT DO NOT MEET ALL INCLUSION CRITERIA?>>DO YOU MEAN IN TERMS OF ACCOUNT? I DON’T KNOW IF YOU CAN STILL SEE MY SCREEN, SO WE HAVE AND SCORE CARDS, SO WE DON’T EXACTLY HAVE THE DIFFERENTIAL COUNT BETWEEN THOSE THAT DON’T MEET AND THOSE THAT WE’RE STILL WORKING TO SECURE THAT PERMISSION AGREEMENT.>>BECAUSE WE OFTEN GET PERMISSION AGREEMENTS FROM DEVELOPERS ON AN — WELL, WE DO GET THEM ON AN ONGOING BASIS SO WE NEVER REALLY KEEP ACCOUNT OF THE — WHAT WE CALL THE LINKOUTS TO THE FULL TEXT GUIDELINE. SEEKING PERMISSION AGREEMENTS FROM THE DEVELOPER IS AN ONGOING ACTIVITY.>>AND IT DOES TAKE TIME.>>FOR THE INCLUSION CRITERIA, WOULD YOU CONSIDER ADDING A QUALITY APPRAISAL?>>I ASSUME USERS — A QUALITY APPRAISAL OF EVIDENCE AND THE ANSWER WOULD BE NO.>>IF A GUIDELINE IS OLDER THAN FIVE YEARS BUT HAS BEEN REAFFIRMED MORE RECENTLY, WOULD IT STILL BE INCLUDED IN THE GUIDELINES TRUST USERS THINKING ABOUT ONES THAT WERE CREATED YEARS AGO BUT REAFFIRMED MORE RECENTLY?>>YES. THAT IS SOMETHING THAT I BELIEVE NGC USED TO HAVE THAT PROCESS, THE GUIDELINES TRUST DOES NOT. SO THE GUIDELINE DOES HAVE TO BE UPDATED AND REPUBLISHED.>>AND WHAT WE DO DO IS, FOR THOSE GUIDELINES WE KNOW WILL BE WHAT WE SAY AGING OUT, WE PROVIDE THE GUIDELINE DEVELOPER WITH NOTIFICATION, AND I BELIEVE WE DID THAT JUNE OF THIS YEAR TO LET THOSE DEVELOPERS WHO HAD GUIDELINES UNREPRESENTED ON OUR SITE, THAT THEIR GUIDELINES WOULD BE TAKEN DOWN BY THE END OF THIS YEAR UNLESS THEY WERE UPDATED — WE DO LET DEVELOPERS KNOW WHEN THEIR GUIDELINES ARE READY, AGAIN GIVING THEM A SIX-MONTH TIME FRAME THAT THEIR GUIDELINES WILL BE WITHDRAWN.>>AND DO YOU KEEP JUST ONE VERSION OF THE GUIDELINE AT A TIME, SO IF THERE WAS AN UPDATE BEFORE THE FIVE YEARS, WOULD YOU REPLACE THE OLDER GUIDELINE?>>YES, WE WOULD.>>AND HOW WOULD YOU KNOW IF THERE’S AN UPDATE BEFORE THE FIVE YEARS?>>YES, EITHER THE GUIDELINE DEVELOPER REACHES OUT TO US AND NOTIFIES US, BUT WE ALSO — HERE WE ARE CONTINUALLY DOING SEARCHES FOR GUIDELINES AND UPDATES OF GUIDELINES AND WE MONITOR DEVELOPERS’ WEBSITES.>>IS THERE AN EXPORT LIMIT FOR THE NUMBER OF GUIDELINES THAT CAN BE EXPORTED?>>NO.>>THOSE ARE ALL THE QUESTIONS FROM THE CHAT BOX RIGHT NOW, AND WE’LL HAVE ONE FINAL TIME FOR QUESTIONS AT THE END OF THE PRESENTATION.>>HI, EVERYONE. THIS IS LISA HASKELL. I AM GOING TO GO THROUGH A LITTLE MORE IN DEPTH ON THE GUIDELINE BRIEFS AND THEN I’LL TALK ABOUT THE TRUST SCORECARD. SO I’M NOT REALLY PLANNING TO READ WHAT’S ON THESE SLIDES. I WILL LET YOU READ THAT. I THINK THEY’RE FAIRLY SELF EXPLANATORY. HERE WE’RE LOOKING AT THE OVERVIEW PAGE, AND THIS WILL PROVIDE YOU WITH THE GUIDELINE TOPIC AND THE PATIENT POPULATION. YOU MAY BE ABLE TO GET THE GUIDELINE TOPIC, OF COURSE, FROM LOOKING AT THE TITLE OF THE GUIDELINE, BUT IT’S NOT AS OFTEN THAT YOU WILL BE ABLE TO DETERMINE WHAT THE PATIENT POPULATION IS. THIS INFORMATION IS JUST TO HELP USERS WHO WANT TO GET AN IDEA WHETHER THIS PARTICULAR GUIDELINE IS RELEVANT, SOMETHING THAT THEY WOULD LIKE TO TAKE A BETTER LOOK AT. SO WE’RE GOING TO MOVE ON TO THE GUIDELINE RECOMMENDATIONS. THIS IS ARGUABLY THE MOST IMPORTANT PART OF THE GUIDELINE BRIEF FOR THOSE READERS AND THAT IS WHY WE LEAD WITH IT. WE WILL INCLUDE THE RECOMMENDATION STATEMENTS, THEY ARE COPIED VERBATIM FROM THE ORIGINAL GUIDELINE, AND WE WILL PUT THEM IN THE SAME ORDER. WHERE THE GUIDELINE PROVIDES THE INFORMATION, WE WILL ALSO INCLUDE THE QUALITY OF EVIDENCE AND THE STRENGTH OF THE RECOMMENDATION WHICH YOU SEE HERE IN BOLD TYPE. LOOKING STILL AT WHAT ELSE IS IN THIS PARTICULAR AREA, THIS PARTICULAR FIELD, WE HAVE THE EVIDENCE RATING SCHEME AND THE RECOMMENDATION RATING SCHEME. THIS IS HELPFUL BECAUSE WHEN YOU SEE THE RATINGS ON THE GUIDELINES ABOVE, THIS WILL GIVE YOU A BETTER IDEA OF WHAT THE GUIDELINE CONSIDERS A HIGH QUALITY OF EVIDENCE, ALSO WHAT WOULD BE REQUIRED FOR A RECOMMENDATION TO BE RATED AS STRONG. IN ADDITION, THE IOM DEFINITION OF A CLINICAL PRACTICE GUIDELINE INCLUDES AN ASSESSMENT OF THE POTENTIAL BENEFITS AND HARMS THAT ARE ASSOCIATED WITH IMPLEMENTATION. SO WHERE WE CAN DETERMINE THOSE, WE WILL LIST THEM IN THE GUIDELINE BRIEF. I SHOULD MENTION THAT THE INTRODUCTION OF BENEFITS AND RISK, WHEN WE FIRST STARTED ASKING FOR THEM, WAS SOMETHING OF A CHALLENGE FOR GUIDELINE DEVELOPERS. BECAUSE THEY GENERALLY THOUGHT THAT THEIR GUIDELINES ONLY HAD BENEFITS AND THEY WERE VERY RELUCTANT TO DETERMINE WHETHER THERE WERE ANY RISKS OR NOT, SO THIS HAS BEEN SOMETHING THAT WE’VE BEEN ABLE TO BUILD UP OVER THE YEARS. SO WE’RE GOING TO MOVE ON TO ANOTHER SECTION OF THE GUIDELINE BRIEF, WHICH IS THE METHODS, AND FOR RESEARCHERS, IT’S OFTEN THE GUIDELINE METHODOLOGY THAT THEY REALLY WANT TO SEE. YOU CAN SEE THAT THIS SECTION IS ORGANIZED UNDER VARIOUS HEADINGS, LITERATURE SEARCH, STUDY SELECTION, QUALITY ASSESSMENT, EXTERNAL REVIEW, UPDATING, AND PATIENT INVOLVEMENT. THOSE HEADINGS CORRESPOND WITH IOM STANDARDS, SO WE KEEP THEM IN THE SAME ORDER AS THEY APPEAR IN THE IOM STANDARDS. THIS IS A WAY TO — BY PRESENTING THIS INFORMATION, WE HOPE IT GIVES READERS A BETTER UNDERSTANDING OF WHERE THAT INFORMATION GOES IN THE TRUST SCORECARD AND PERHAPS SOME INSIGHT INTO THE VARIOUS RATINGS THAT ARE PROVIDED. CONTINUING WITH THE METHODS FIELD, WE INCLUDE THE GUIDELINE FUNDER, THE GUIDELINE DEVELOPMENT GROUP, AND ANY INFORMATION THAT’S PROVIDED ABOUT THEIR FINANCIAL CONFLICT OF INTEREST. THESE FIELDS ALSO CORRESPOND WITH IOM ELEMENTS, AND THIS SECTION REALLY ALIGNS WITH ONE OF IOM’S GOALS, WHICH WAS TO BRING TRANSPARENCY TO THE GUIDELINE DEVELOPMENT PROCESS. MOVING ON TO ANOTHER SECTION OF THE GUIDELINE BRIEF, WE’RE TALKING ABOUT RELATED CONTENT. HERE WE HAVE SUPPORTING DOCUMENTS, WHICH ARE OFTEN OF INTEREST TO RESEARCHERS WHO WANT TO GET A BETTER IDEA OF HOW A GUIDELINE WAS DEVELOPED, DO THEY WANT TO LOOK AT THE EVIDENCE TABLES. IMPLEMENTATION TOOLS, THESE ARE TOOLS GENERALLY GEARED TOWARDS CLINICIANS. YOU CAN SEE IN THIS CASE THAT THIS PARTICULAR ONE WAS AVAILABLE IN MANY LANGUAGES. WE WILL LIST THOSE, AND IF THERE ARE PATIENT EDUCATION TOOLS THAT WERE DESIGNED TO ACCOMPANY THIS GUIDELINE, WE WILL ALSO LINK OUT TO THEM HERE. I SHOULD MENTION THAT WHEN YOU LOOK AT THE EVIDENCE PROFILES, THE LINK WILL GO DIRECTLY TO WHEREVER THIS INFORMATION IS HOUSED. IT MAY BE AT THE DEVELOPER’S WEBSITE, IT MAY BE AT A JOURNAL WEBSITE, BUT WE WILL TAKE YOU THROUGH TO WHEREVER YOU CAN FIND IT. AND FINALLY, WE’RE AT THE GUIDELINE BRIEFS COPYRIGHT AND DISCLAIMER SECTION. THE COPYRIGHT WILL INDICATE BRIEFLY THAT THE GUIDELINE BRIEFS AND THE TRUST SCORECARD ARE PROTECTED BY COPYRIGHT, AND THEY CANNOT BE RE-USED OR REPRODUCED WITHOUT PERMISSION FROM ECRI. SIMILARLY, WE ACKNOWLEDGE THAT THE GUIDELINE DEVELOPER HOLDS THE RIGHTS TO THE ORIGINAL GUIDELINE, AND ANY SUPPLEMENTARY MATERIALS. THE DISCLAIMER ESSENTIALLY SAYS THAT HEALTHCARE PROFESSIONALS HAVE THE RESPONSIBILITY TO DETERMINE WHETHER THE GUIDANCE THAT’S PROVIDED IS APPROPRIATE FOR THEIR SPECIFIC CLINICAL SETTING AND PATIENT. I’M GOING TO MOVE ON TO MY LAST SLIGHT>>NO.>>OH, I’M SORRY. TRUST SCORECARD. I’M GETTING AHEAD OF MYSELF. WE’RE GOING TO TALK ABOUT THE TRUST SCORECARD NOW AND AS WAS MENTIONED, THE TRUST SCORECARD TAKES A LOOK AT THE EXTENT TO WHICH THE GUIDELINE ADHERES TO THE STANDARDS PUT OUT BY THE IOM, THE STANDARDS FOR TRUSTWORTHINESS. AT THE TOP OF THE TRUST SCORECARD, WE BREAK INTO MULTIDISCIPLINARY GUIDELINE DEVELOPMENT GROUP MEMBERS, METHODOLOGIST INVOLVE. THESE ARE RATED AT YES/NO, BECAUSE IN THIS SITUATION, IT’S REALLY DIFFICULT TO DETERMINE THE EXTENT TO WHICH A GUIDELINE DEVELOPMENT GROUP IS MULTIDISCIPLINARY. IT IS VERY DIFFICULT TO DETERMINE THE EXTENT TO WHICH A METHODOLOGIST WAS INVOLVED. SO IN ORDER FOR US TO MAKE THIS OPERATIONAL, WE REALLY HAD TO JUST DECIDE TO MAKE IT A YES OR NO. THE GUIDELINE DEVELOPMENT GROUP IS EITHER FROM WHAT WE CAN TELL BY LOOKING AT CREDENTIALS AND AFFILIATIONS IS EITHER MULTIDISCIPLINARY OR IT’S NOT. IF IT’S NOT, THEN IT GETS A NO. SIMILAR WITH METHODOLOGISTS, WE TAKE A LOOK AND DETERMINE IF THE METHODOLOGIST IS NAMED IN THE GUIDELINE, WHICH IS OFTEN THE CASE, WE CAN SAY YES. IF NO METHODOLOGIST IS MENTIONED, WE WOULD GIVE A NO. DEVELOPERS ARE FREE TO CORRECT THIS INFORMATION, AND WILL REVIEW THE TRUST SCORE CARDS BEFORE THEY GO AND IF THEY WILL PROVIDE US WITH DOCUMENTATION, WE WILL OFTEN CHANGE THE NO TO A YES. LOOKING AT THE NEXT ONE, INCORPORATION OF PATIENT AND PUBLIC PERSPECTIVE, THIS IS RATED ON THE 1 TO 5, 1 BEING THE LEAST — 1 STAR IS THE LEAST AMOUNT OF ADHERENCE AND 5 BEING THE GREATEST EXTENT OF ADHERENCE TO THE IOM STANDARD. MOVING ON TO WHAT WOULD BE THE AREA FOR THE SYSTEMATIC REVIEW OF EVIDENCE, WE WOULD BE LOOKING AT THE LITERATURE SEARCH, THE STUDY SELECTION, AND THE EVIDENCE SYNTHESIS. THESE ARE ALL RATED ON A 1 TO MOVING ON TO THE FOUNDATIONS FOR RECOMMENDATION, THIS WOULD BE THE STRENGTH OF THE EVIDENCE GRADE, THE DESCRIPTION OF BENEFITS AND HARMS OF RECOMMENDS. YOU MAY REMEMBER WHEN I WENT OVER THE BRIEF THAT THIS WAS SOME OF THE AREAS THAT I COVERED. AND A SUMMARY OF EVIDENCE SUPPORTING THE RECOMMENDATION. NOW THESE AREAS ARE INCLUDED IN THE INCLUSION CRITERIA. SO IT’S LIKELY THAT ANYBODY WHO HAS MET THE INCLUSION CRITERIA WILL DO BETTER ON THESE PARTICULAR ONES BECAUSE WE’VE ALREADY CHECKED THAT BEFORE THEY’RE ACCEPTED. STRENGTH OF RECOMMENDATION RATINGS, I INCLUDED — I SHOWED YOU THE RECOMMENDATION RATING SCHEME WHICH WE INCLUDE, AND CLEAR ARTICULATION OF RECOMMENDATIONS. THIS IS WHERE WE LOOK AT THE ACTUAL RECOMMENDATION STATEMENTS AND WE ASSESS THE EXTENT TO WHICH THEY RECOMMEND WHAT IS BEING DONE FOR WHOM UNDER WHAT CIRCUMSTANCES. WE WANT THE LANGUAGE TO BE CLEAR, CLEARLY ARTICULATED SO THAT THE DIRECTION IS OBVIOUS. FUNDING SOURCE AND DISCLOSURE AND MANAGEMENT OF CONFLICTS OF INTEREST. THE FUNDING SOURCE IS ANOTHER YES/NO ENTRY. THE SOURCE OF FUNDING IS EITHER IDENTIFIED OR IT’S NOT. IN TERMS OF THE DISCLOSURE FOR FINANCIAL CONFLICT OF INTEREST, THIS IS A RATED 1 TO 5, DEPENDING ON WHETHER THE DEVELOPER HAS A PROCESS IN PLACE TO DETERMINE FINANCIAL CONFLICT OF INTEREST, HOW DETAILED IT IS, AND WHETHER IT IS DOCUMENTED. THIS PART OF THE SCORECARD LOOKS AT EXTERNAL REVIEW AND UPDATING. FOR EXTERNAL REVIEW, WE LOOK TO SEE WHETHER THE GUIDELINE WAS REVIEWED BY PERSONS NOT DIRECTLY INVOLVED IN THE DEVELOPMENT OF THE GUIDELINE. DEVELOPERS CAN UPGRADE THEIR RATING IN THIS AREA BY POSTING THE DIRECT GUIDELINE FOR PUBLIC COMMENT AND DESCRIBING THEIR PROCESS FOR INCORPORATING THAT FEEDBACK. UPDATING FOR THIS STANDARD, WE CHECKED TO SEE IF THERE IS AN ACTUAL PROCESS FOR REVIEWING GUIDELINES AND DETERMINING WHETHER THEY SHOULD BE UPDATED, AND WE WOULD LIKE TO SEE A TIMELINE ATTACHED TO THAT PROCESS. FINALLY FOR MY LAST SLIDE, WE’RE PUTTING UP — WE HAVE A MULTISTEP PROCESS FOR REGISTRATION. HERE WE HAVE PROVIDED THE STEPS THAT WILL TAKE YOU THROUGH THAT. AND WE HOPE THAT THIS IS SOMETHING THAT YOU WOULD SHARE WITH YOUR COLLEAGUES TO ENCOURAGE THEM TO SIGN UP FOR THIS FREE PUBLICLY ACCESSIBLE REPOSITORY.>>OKAY.>>IF YOU HAVE ANY QUESTIONS ON HOW TO REGISTER, YOU CAN GO TO THE GUIDELINES.ECRI.ORG AND YOU’LL SEE THAT THERE’S A SIGN-IN, AND THAT SHOULD HELP YOU.>>WHO CREATES THE GUIDELINE BRIEFS? IS IT DEVELOPER-PROVIDED OR IN COLLABORATION WITH ECRI?>>THE GUIDELINE BRIEFS ARE CREATED BY STAFF HERE AT ECRI AND THE TRUST SCORE CARDS. AND BOTH OF THOSE PRODUCTS ARE SENT TO THE GUIDELINE DEVELOPER FOR REVIEW PRIOR TO THE TIME THAT THEY ARE POSTED. ONCE THE DEVELOPER HAS THIS FOR REVIEW, THERE WILL BE COLLABORATION BACK AND FORTH TO RESOLVE ANY QUESTIONS AND AFTER THAT PERIOD, THEY WILL BE POSTED TO THE WEBSITE.>>AND DO THE STAR RATINGS FOLLOW SOME TYPE OF RUBRIC?>>YES. THE 1 STAR INDICATES THE LEAST AMOUNT OF ADHERENCE, THE LOWEST AMOUNT OF ADHERENCE TO THE IOM STANDARD. HIGHEST AMOUNT OF ADHERENCE TO THE IOM STANDARD.>>DO ANY OF THE GUIDELINES INCLUDE A PATIENT EDUCATION COMPONENT? IS THE PATIENT CONTENT SOMETHING THAT WILL BE DEVELOPED MORE IN THE FUTURE?>>THERE IS A PATIENT EDUCATION COMPONENT IN THE GUIDELINE BRIEF. HOWEVER, IF THE GUIDELINE DOES NOT PROVIDE ANY PATIENT EDUCATION INFORMATION, IT WILL NOT BE INCLUDED IN THE BRIEF WHERE THEY DO PROVIDE IT, WE WILL LIST IT AND LINK OUT TO IT.>>GREAT. SO FOLKS, THIS IS THE LAST CHANCE TO ASK ANY QUESTIONS OF OUR SPEAKERS WHILE I AWAIT ANY ADDITIONAL QUESTIONS, I WANT TO THANK YOU SO MUCH, ANNE, LISA AND JANICE. THIS WAS A VERY INFORMATIVE WEBINAR. IT’S DEFINITELY SOMETHING THAT WE HAVE BEEN ASKED FOR HERE AT THE NETWORK, WHAT THE REPLACEMENT IS FOR THE NATIONAL GUIDELINE CLEARINGHOUSE AND I’M SO HAPPY THAT I RAN INTO YOU ALL AT MLA AND I REALLY APPRECIATE YOUR GENEROSITY IN SPEAKING TO US TODAY.>>WE THANK YOU ALL FOR INVITING US TO SPEAK. YOU KNOW, WE ARE GOING TO BE — AS MUCH AS WE CAN, WE’RE GOING TO BE TRYING TO — CONFERENCES MORE NOW THAT WE ARE UP AND RUNNING, SO WE WILL BE POSTING WEBINARS AND UPCOMING CONFERENCES IN OUR NEWS LET ARE, SO IF YOU SIGN UP, YOU’LL HAVE THE NEWSLETTER THAT WILL HAVE THESE POSTINGS. IF YOU WANT TO HAVE CONVERSATION, FEEL FREE TO EMAIL US, WE CAN SET UP CALLS, WE’RE MORE THAN WELCOME TO TALK TO YOU. WE KNOW YOU’RE A BIG USER GROUP OF GUIDELINES AND WE WANT TO HELP YOU IN YOUR DAILY PRACTICE AS MUCH AS POSSIBLE.>>LOTS OF THANK YOUS IN THE CHAT BOX AND A FEW ADDITIONAL QUESTIONS.>>OKAY.>>COULD YOU ELABORATE ON HOW THE LIT SEARCH IS ASSESSED FOR THE SCORECARD?>>SURE, THE LITERATURE SEARCH, WE WILL LOOK AT THE LITERATURE SEARCH TO SEE HOW MANY DATABASES THEY HAVE USED. WE EXAMINE THE SEARCH TERMS, WE SEE WHETHER THE SEARCH APPEARS TO BE REPRODUCIBLE. WE ARE ALSO LOOKING FOR THE DATE OF THE SEARCH FROM THE BEGINNING TO THE END DATE. WE’D LIKE TO HAVE THE MONTH AND THE YEAR. AND THAT’S THAT FOR THE SEARCH TERMS. THERE IS A LOT MORE THAT GOES INTO LOOKING AT A GUIDELINE.>>HOW LONG DO GUIDELINE DEVELOPERS HAVE TO REVIEW THE BRIEF SCORECARD AFTER IT’S COMPLETED AND BEFORE IT’S POSTED?>>WE INITIALLY PROVIDE THEM WITH A WEEK, AND IF THEY REQUIRE ADDITIONAL TIME, IT’S SIMPLY A MATTER OF ASKING US AND WE USUALLY WORK WITH THEM ON THAT.>>HOW DO YOU MAINTAIN IMPARTIALITY WHEN CONSULTING WITH THE DEVELOPERS?>>WELL, IN TERMS OF — I MEAN, IT’S NOT AS DIFFICULT AS PEOPLE MIGHT THINK. THE GUIDELINE BRIEF, THE ELEMENTS THAT GO INTO THE GUIDELINE BRIEF, AS I SAID, THERE’S REALLY NO QUESTION, THEY’RE EITHER THERE OR THEY’RE NOT THERE. WE INCLUDE THE INFORMATION VERBATIM WHEN WE HAVE IT. IN TERMS OF THE TRUST SCORECARD, AGAIN, WE DO HAVE DEVELOPERS WHO COME BACK TO US AND SAY, WELL, I THINK I DESERVE A HIGHER SCORE ON A PARTICULAR ITEM. IF THEY CAN DEMONSTRATE THAT THEY FULFILLED THE CRITERIA FOR THAT PARTICULAR ITEM, THEN WE WILL RAISE THE SCORE. BUT IN MANY CASES, THE DEVELOPERS ACKNOWLEDGE THAT THEY DID NOT COMPLETELY FULFILL THE REQUIREMENTS AND THEY END UP SAYING, WELL, WE’LL DO THAT NEXT TIME AROUND. AND MANY OF THEM DO.>>LISA, I ALSO WANTED TO JUMP IN BECAUSE SOME DEVELOPERS GIVE US PERMISSION TO POST THEIR CONTENT WITHOUT HAVING TO REVIEW IT. SO WE HAVE TWO INSTANCES WHERE DEVELOPERS EITHER WANT TO REVIEW THEIR BRIEF AND SCORECARD PRIOR TO POSTING, OTHERS THAT, YOU KNOW, MANY OF THESE DEVELOPERS HAVE LONG-STANDING RELATIONSHIPS WITH US, THEY CHOOSE TO JUST LET US GO AHEAD AND POST WITHOUT THEIR REVIEW.>>I THINK I HAVE ASKED THE QUESTIONS IN THE CHAT BOX. LOTS OF THANK YOUS, VERY INFORMATIVE, THANK YOU FOR MAKING IT AVAILABLE FOR FREE AND MAKING IT EASY TO LOCATE TRUSTED GUIDELINES. SOMEBODY ASKED, DO YOU HAVE TO CREATE A LOGIN? YES, I THINK I KNOW THE ANSWER AFTER WATCHING THIS WEBINAR.>>YES. YOU MUST REGISTER FOR FREE ACCESS TO THIS RESOURCE.>>GREAT. THANK YOU ALL SO MUCH. THANK YOU ALL PARTICIPANTS FOR YOUR GREAT QUESTION AND YOUR PARTICIPATION IN THIS WEBINAR. WHEN YOU CLOSE WEBEX, WHEN WITH HE END THE SESSION, YOU WILL BE REDIRECTED TO THE EVALUATION WHICH YOU CAN FILL OUT TO GET YOUR ONE HOUR OF MLA CE. THANKS, EVERYONE. THANKS FOR WATCHING. THIS VIDEO WAS PRODUCED BY THE NATIONAL NETWORK OF LIBRARIES OF MEDICINE. SELECT THE CIRCULAR CHANNEL ICON TO SUBSCRIBE TO OUR CHANNEL. SELECT A VIDEO THUMBNAIL TO WATCH ANOTHER VIDEO FROM THE CHANNEL.

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